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Forum

Jessica

If You Are On The Waiting List...

if your on the waiting list and have questions feel free to contact me, I had a heart/Double lung transplant.

Started by Jessica in New to the Cafe? Introduce Yourself to the Community! 44 minutes ago.

Heather Brenner

I am trying to write to my donor family!! HELP?? 15 Replies

Hello all, I am 1 year and about 2 months out from my liver transplant and I got the "ok" to write my donor family, I am having trouble getting it started and I also am not sure what to write and n...

Started by Heather Brenner in Liver Transplants. Last reply by Debbie 12 hours ago.

Jodi Kleibel

My health since the Liver Transplant 18 Replies

Have any other liver transplant recipients noted being regularly tired? Are any other liver transplant recipients on Boniva? I received my new liver five years ago. The above two issues are ones to...

Started by Jodi Kleibel in New to the Cafe? Introduce Yourself to the Community!. Last reply by Bobbiejo Winfrey 12 hours ago.

Catherine J Geisen (Cathy)

H1N1 The Vaccine Is Here In Florida How Many Are Getting The Vaccine ? ? 7 Replies

I have brought up the Flu Vaccine Before I Didn't Get It Yet ! Now The H1N1 Is Here... So many people are sick and it isn't Flu Season here in Florida! They are not testing as they did when the ...

Started by Catherine J Geisen (Cathy) in General Discussion & Community. Last reply by Diana Watson 18 hours ago.

robi

looking for firends 11 Replies

hi i am new here....i have a few feelings like what i have read and that is before transplant... i llive in a state where i don't have any friends, haven't been here long, and i am not sure about m...

Started by robi in On the Transplant Waiting List?. Last reply by Jill Schro 23 hours ago.

Catherine J Geisen (Cathy)

Hair Still Horrible Now 1 Year 2 Months Liver Transplant 08/30/2008 9 Replies

Well my last post was when I was 5 months post transplant. Now I am 1 year 2 months and my hair is still horrible.... About a month or so I had no energy I felt so horrible and got an appointment ...

Started by Catherine J Geisen (Cathy) in Liver Transplants. Last reply by Holdol Nov 8.

Dave Kaltenberg

Transplant from a type O to a B 2 Replies

Has anyone received a transplant from a type O to a type B? I am waiting for a result of a brother in law. I feel very fortunate that he would even consider this. I have had problems with other don...

Started by Dave Kaltenberg in Kidney / Pancreas Transplants. Last reply by Tracy & Nancy Nov 8.

Susanne Renate Frey

flu shot with a suppressed immune system 4 Replies

I have a transplanted kidney since 34 years and take Imurek and Prednison. I never had a flu shot but I wonder who in the same situation had one and with which side effects? Thank you for your resp...

Started by Susanne Renate Frey in New to the Cafe? Introduce Yourself to the Community!. Last reply by Susan Farrell Nov 7.

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Blog Posts

NFT

November is National Marrow Awareness Month

Posted by NFT on November 9, 2009 at 1:52pm

Jay Robare

My transplant is getting very close.

Posted by Jay Robare on November 8, 2009 at 6:54pm — 3 Comments

Reagan Wilkins

New Here!

Posted by Reagan Wilkins on November 6, 2009 at 9:43pm — 1 Comment

Terri Lynne

Liver labs not so good, yet again

Posted by Terri Lynne on November 6, 2009 at 6:57pm — 4 Comments

Rachael Beecy

still waiting!

Posted by Rachael Beecy on November 5, 2009 at 12:32am — 7 Comments

NTAF

New NTAF Website

Posted by NTAF on November 4, 2009 at 6:18pm

American Transplant Foundation

Colorado's Newest License Plate

Posted by American Transplant Foundation on November 3, 2009 at 2:00pm

Paul Anthony Worthington

Weight-loss... progress report

Posted by Paul Anthony Worthington on November 3, 2009 at 12:26pm

Joanna Voguit

my donor info

Posted by Joanna Voguit on November 2, 2009 at 11:14pm — 3 Comments

TRACY CAMELIO

i always wonder what my donor looked like

Posted by TRACY CAMELIO on November 1, 2009 at 6:53pm — 4 Comments

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Latest Activity

Jessica added a discussion
If You Are On The Waiting List...
if your on the waiting list and have questions feel free to contact me, I had a heart/Double lung transplant.
42 minutes ago
Jessica is now friends with Steven May and Jason
45 minutes ago
lisa marie gottlieb and alan burtness are now friends
1 hour ago
lisa marie gottlieb added 2 photos
1 hour ago
Rachael Beecy left a comment for Holdol
1 hour ago
Rachael Beecy left a comment for Alicia Nelson
1 hour ago
Rachael Beecy is now friends with Alicia Nelson and Reagan Wilkins
1 hour ago
Rachael Beecy commented on Rachael Beecy's blog post 'still waiting!'
Got my first call on friday everyone...but it was a false alarm. So the next one can't be too far away!
1 hour ago

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Member Blog Posts

November is National Marrow Awareness Month

Are you awaiting a bone marrow transplant? Did you know November is National Marrow Awareness Month? This may be the perfect time to plan a bone marrow drive! To plan a drive, simply call your local bone marrow recruitment center, and they will walk you through the process. Click here to find a recruitment center in your area.

Seventy percent of bone marrow patients do not have a matched dono…

My transplant is getting very close.

This is my first posting in quite some time. The last 6 months I have been waiting for different things to happen and it has been both an exciting and frustrating time. A friend who became a client of mine at the chiropractor asked me if she could donate one of her kidneys to me; I gladly accepted. She gave 13 vile's of blood and off to the lab it went. About 5 weeks later I got a phone call telling me that my friend was a very good match and that transplant might happen as soon as early Decembe…

New Here!

Hello Everyone,
I am new here so I just wanted to introduce myself. I had my liver transplant 16yrs ago in October. My name is Reagan and I live in Virginia. At 7 weeks my parents found out I had Biliary atresia. They did except me to live to the age of 2. I did great until the age of 10 or 11 and my liver started to fail. And when it did it effected my lungs and esophagus. I was on the list for 6 months before I got the call on October 6th 1993. My surgery last 24+ hours. When the went in they…

Liver labs not so good, yet again

I really was thinking positive and was sure numbers would be better this week, I kept telling myself that. I go today, had labs and visited with friends who were also their getting labs. Today was a great day. I come home, coordinator calls me says numbers are high again and even higher than before so I get to go back again next week for labs and MRI. I am not going to let this get to me though. I can handle this.

The other test about my disease wont be back for a week.

still waiting!

Still waiting with a MELD of 25....go up to a 28 as of Nov 22!
 

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