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Gail Csizmar
- Female
- Salemburg, NC
- United States
- Share
- Blog Posts (11)
- Discussions (38)
- Events
- Groups (8)
- Photos (9)
- Photo Albums
- Videos
Music
Gail Csizmar's Groups
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Fans of Three Rivers on…
66 members
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Holdol's TC Kitchen
65 members
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Latest Transplant News F…
179 members
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The "Show Off Your SCAR"…
44 members
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Fundraisers Unite!
26 members
Gail Csizmar's Discussions
LEVAQUIN
Started Apr 26
Curiosity Would you or Wouldn't you?
11 Replies
Started this discussion. Last reply by Mark E Mar 15.
Drug-induced auditory hallucinations
Started Jan 18
Walk & Rock A Thon
Replied Dec. 17, 2008
When do you stop worrying about rejection?
Replied Dec. 9, 2008
When do you stop worrying about rejection?
Replied Dec. 1, 2008
Solu-medrol
Replied Oct. 13, 2008
Solu-medrol
Replied Oct. 10, 2008
Solu-medrol
6 Replies
Started this discussion. Last reply by Gail Csizmar Oct. 13, 2008.
Transplant ~ Dignosed Pulmonary Hypertension
Replied Sep. 26, 2008
Transplant ~ Dignosed Pulmonary Hypertension
Replied Sep. 25, 2008
Nicola
Started Sep. 10, 2008
Hope everyone has a nice Thanksgiving !
Gifts Received
Gail Csizmar has not received any gifts yet
Latest Activity
Profile Information
- What is your city / state and country of residence?
- Salemburg, North Carolina,USA
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Double Lung
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- Aloha Koll Rindy who was my donor.
Dr. Dwayne Davis my transplant surgeon.
My family for encouraging me throughout my illness and transplant journey.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- If you are a recipient, when did you have your transplant(s)?
- May 25,1994
- What is your principal transplant med(s)?
- Sandimmune
Prednisone
Rapamune
- What is your hospital and, or doctor's name, city / state and country?
- Duke University
Durham NC
USA
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- I had Primary Pulmonary Hypertension and received a double lung tx May 25,1994.
I was 35 when I was diagnosed with PPH. It unfortunately is hereditary in my family. There is no cure for it. At that time there were no medicines for it but there was a study being done for an experimental drug called flolan. I was lucky enough to be put into the study program for it. It worked for a few months but my health started to deteriorate very quickly. In May of 1993 I was put on the transplant list for a double lung. The following May I got my call that a donor had been found. I was just a month shy of turning 37 when I received my lungs. I am proud to say I have turned 52. When I was diagnosed I never thought that I would even be alive at 40 never the less 52. Needless to say when asked my age I proudly will admit I am 52 and hope to be around many more years.
Well I just found out October 2, 2008 that I am experiencing my very first time with rejection in my airways. I guess they are right when they say it can happen at any time. I am grateful that I have gone so many years without it.
- What is your relationship status?
- Married
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- I like old movies. My favorite is "A Wonderful Life"
Favorite animated movie "Annabell's Wish".
I like all kinds of crafts. Enjoy making jewelry for family and friends.
I enjoy country music.
- What is Your Favorite Quote(s)?
- I'm walking , talking and breathing so I am fine.
- My "MySpace" Page:
- http://www.myspace.com/windsong1
Gail Csizmar's Photos
Gail Csizmar's Blog
Memorial Day..... May 25,2009
First Thank You to all of our Soldiers who gave their Life for our Freedom. Also for those who are serving in the armed forces...Thank You.
A very special Thank You to my Donor and her Family.
I received a second chance at life 15 years ago today. A family was going through great sadness and heartache but still found it in their hearts to give "THE GIFT OF LIFE". It is a day of great sadness for me because a life was lost to give me life. It is hard to be happy… Continue
Posted on May 25, 2009 at 3:28pm — 3 Comments
No Rejection
Posted on February 6, 2009 at 10:52pm — 2 Comments
Why I joined TransplantCafe
I hate it when you get people that have no idea what transplant means.
I hear people say I know what you must be going through. NO they DON'T know. Until they have walked in a transplant patients shoes they have no clue as w… Continue
Posted on October 8, 2008 at 8:33pm — 1 Comment
rejection :(
Posted on October 2, 2008 at 7:30pm — 3 Comments
Bronch is over yipee!!
Posted on October 1, 2008 at 2:04pm — 1 Comment
Comment Wall (19 comments)
- At 3:41pm on April 1, 2009,
Maria Fuller said…
- I am very thankful that you responded to my blog. How did you feel after your tx? I think it will be crazy to be able to breath without oxygen machine hanging of my shoulders. I will just be glad to finally play with my children. That is what keeps me motivated. I am also nervous about being kicked off my medical card after the surgery. They said that most people go back to work after about a year and then you have to figure out what you are going to do about paying for the meds. Are working? And what kind of insurance do you have? Sorry i am asking so many questionswhenever you feel like you can comment back thanks for your time.
- At 4:38pm on March 21, 2009,
Kathryn Flynn said… - You are so welcome and I am so proud of you for getting this altogether on your own.
- At 2:48pm on October 20, 2008,
Nulungs95 said… - Been busy with my trip to NYC and my daughter coming to see us last week. She had a few days off (more days than Thanksgiving) from NYU and came to visit. We had a great long weekend.
Thanks for asking.
- At 7:32pm on September 23, 2008,
Carmalita Shafer said… - Hi Gail, I enjoyed reading your profile. It gives me hope knowing you are a 15 year survivor! Hope to talk to you again soon.
- At 11:20pm on September 16, 2008,
KidneyKorner.com said… - Ya we are working on it (other designs) .. but .. umm.. should I delete my last comment before this since we are no longer allowed to add links?? I don't want to upset anyone..
- Angie
- At 5:51pm on September 15, 2008,
Kathryn Flynn said…
- Hi!
I think it is about a 3 mile walk.
- At 12:11pm on September 14, 2008,
Justine said… - hey lovely..hows u? Thanks for your last message. All has been going good for me..just been keeping busy with life. What have u been up to too..and hope u r well too. x x
- At 8:37am on September 7, 2008,
Kathryn Flynn said…
- Hi Gail-
Sorry to hear about your sister-in-law. I think I have seen you in clinic as your face looks very, very familiar. See you at the walk!
- At 7:14pm on September 3, 2008,
Meghann M. said… - Thanks Gail! :) I think it's quite beautiful, thanks for noticing. Mark sure isn't too happy about it though. HEHEHE.
- At 12:53pm on August 21, 2008,
Susan Friesen said… - Wow, that's awesome you received a double lung transplant!
Susan, mom of 2 daughters with heart transplants, would be glad to be your friend
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