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Michael Strane
  • 35, Male
  • Pasadena, CA
  • United States
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It's a new day, hold on with all your might

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-- ---------------------------- "My father says that almost the whole world is asleep. Everybody you know. Everybody you see. Everybody you talk to. He says that only a few people are awake and they live in a state of constant total amazement." - J.…
on Thursday
November 27
Hope it's gone well. As the nurses said to me when I woke up - "It's a brand new world, hold on tight"
November 27
November 26
November 24
Jim, Your post made my day. I'm only 1 year out, and on one hand I've felt like things have been relatively good, but on the other I'm getting frustrated with all the minor issues. Seeing you with 17 years, makes me feel very optimistic. I hope you…
November 16
I have, I was given Amytriptiline, which bizarrely usually given for depression. Honestly, though I didn't get too much relief from it. It just put me to sleep, quickly, and made me drowsy the entire next day.
November 11

Profile Information

What is your city / state and country of residence?
Pasadena, CA
How are you touched by transplantation?
I am a Recipient
If you are a recipient, what type of transplant did you receive?
Heart
If you are a recipient, what type of donor did you receive your Gift of Life from?
Deceased Donor
If you are a recipient, when did you have your transplant(s)?
9/24/2008
What is your principal transplant med(s)?
Prograf, Prednisone, Imuran
What is your hospital and, or doctor's name, city / state and country?
Dr. Barr, Los Angeles, CA
What do you do for a living?
Geologist
About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
I had a massive heart attack on 7/30/08, my heart was so damaged that a bypass failed and I was put on a heart assist device called a BiVAD. I was sedated and/or comtosed for nearly 6 weeks and woke up in mid September. Miraculously I recovered quickly and was listed on 9/24/08, even more miraculously I received my heart the same day, only 7 hours later.
How did you find out about TransplantCafe.com?
Helpful friend
What is your relationship status?
Engaged
My Facebook Page:
http://www.facebook.com/profile.php?id=788778971&ref=profile

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Michael Strane's Blog

Michael Strane

Too Much Info

Warning: A lot has been going on with me over the past couple months, some of it good, some of it bad, all of it going seems to continue to on and on

It is a time of good news and bad news for me. First the good news, my one year anniversary was on September 24, 2009. Outside of car accident that left Wendy without her car for a month, it was a good day. Wendy and I visited the hospital, delivered a cake and some thank you cards, and went out to a great dinner at Providence . Actually one of th… Continue

Posted on October 25, 2009 at 8:16pm — 4 Comments

Michael Strane

Platelets up, migraine gone

Well, I can easily say that the last 4 days have been the roughest for me since leaving first leaving the hospital after my transplant, just about a year ago. Over the past few weeks my platelet count had slowly been decreasing. Last tuesday, my platelets had dropped to 11,000, prompting my post-transplant doc to refer me to a hematologist. She ordered a platelet transfusion, which bumped the count up to 32,000, which was about half the response they were hoping for. Back on Friday to see if I'd… Continue

Posted on October 7, 2009 at 11:49am — 5 Comments

Michael Strane

Almost a year - down to 2 medications and 8 pills a day

On Monday, I had some extra blood because some previous blood work had shown that I had very low platelets. Well, the platelet count is continuing to go down. As result, I was taken off my last non anti-rejection med, Lipitor, and one of my anti-rejection meds, Arava (which was a replacement for Cellcept). I'm not even 1 year out from my heart transplant. Even before these reduction, my post-transplant Dr., said I was on next to nothing. Now I 'm down to 2 mg of Prograf twice a day, and 5mg Pred… Continue

Posted on September 17, 2009 at 4:56pm — 5 Comments

Michael Strane

New discovery may end transplant rejection

A new development in transplant rejection research

http://www.examiner.com/x-1242-Science-News-Examiner~y2009m4d7-New-discovery-may-end-transplant-rejection

I take it all with a grain of salt. If they come up with something great, either way, just keep living your life.

Posted on April 8, 2009 at 4:26pm — 2 Comments

Michael Strane

Anyone have any experience outside of Arava (Leflunomide)?

I'm now just over 6 months from my heart transplant. While I've not had any issues with rejection, I did manage to come down with the BK virus back in January. The treatment for the BK virus is supposedly pretty toxic, so my doctor has pretty much ruled it out. Anyway, I feel fine. At my last appointment, my blood came up clean, but my urine is still coming up "very" positive for the virus. Long story short, my doctor has taken me off of Cellcept, and put me on Arava (Leflunomide). Does anyone h… Continue

Posted on April 2, 2009 at 5:32pm —

Comment Wall (39 comments)

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At 1:48pm on November 27, 2009, Jay Robare said…
http://www.jacquielawson.com/viewcard.asp?code=2002427018519&source=jl999
At 9:55am on October 9, 2009, Janet Dittman said…
Well Michael, glad you seem back on track. I take imitrex for my migrains and it usual works for me. I feel for what you went through. All those drugs just make it worse (the headache). Go straight for the imitrex next time : )
At 4:24pm on August 10, 2009, Lillian Perez said…
Hi Michael,
Sorry it has taken me so long to log on and respond to your message.
I am the wait list for a kidney transplant at USC. My doctor is Dr. Marquez/Dr. Raj on Washington Blvd. in Pasadena.
Where did you have your transplant? You mentioned it was recently, how are you feeling now? Can you tell me about the surgery and recovery? Were you ever on dialysis? Well enough questions, I'll wait to hear from you.
Adios
Lillian
At 5:29pm on July 31, 2009, James Krupa said…
Hi Mike, Wow, off cellcept! I never knew there was an alternative to it, then again I'm not the Doc. I'm interested on how it works for you. Sometimes I get confused on how to answer on this site, I know it's my inexperience with computers and too many brain cramps. That's my term for "senior moments". How are things in Pasadena? I go there occasionally. Visit the Gold Rush store on Colo Blvd. They handle everything pertaining to gold mining, panning and metal detectors. I bought one and met my twin brother [from Ohio] in Florida along with my bro that lives there, and we really cleaned up finding rings and coins on the beachs. My bro found a 800.00 man's ring and earrings, lots and lots of quarters! Now the sun is taboo for me with this skin cancer issues. We go every year to visit the floats. Hoping someday to be on the Kaiser or Donate Life float. We will help decorate this year, first time. I'll look up what the BK virus is on internet, but how is it affecting you? I had CMV virus from donor heart and almost died from it when they took me off the Valcyte. They never checked for the virus afterward and I slowly started getting sick, 30 days goes by, I goe to ER and my level is 98,000! Skyhigh! 12 days in CCU. Attacked my intestines & kidneys [colitis]. Take care buddy, stay in touch, I'll buy you lunch sometime up there. I'm in Lakewood, next to Long Beach. God Bless, Jim
At 10:48pm on June 23, 2009, Sue Steinhauser said…
when did you get your heart...i have a man's heart..kinda weird but it works...
At 8:40pm on June 23, 2009, Jen Lopez said…
that is awesome! if you haven't already, you gotta check out the Donate Life walks and events. i attended one while i was waiting for a heart in LA and it was fun and relaxing. i hope that infection is getting it's arse kicked.
At 7:26pm on June 23, 2009, Jen Lopez said…
dude! congratulations on your new heart. which hospital were you located for your op?
At 10:16am on June 21, 2009, Simone VanTull said…
14 months with the LVAD. hope it will come soon
At 7:13pm on June 7, 2009, Tara Maynard said…
Hi there Michael...well im back home, no hospital admit this time. For some reason my transplant team has decided not to treat the pseudomonas. But when i do go back to clinic and see my regular tx dr i will be asking lots of questions. I will be questioning why they aren't treating it and let them know I would like something to be done. Im not comfortable with doing nothing. So maybe i will be admitted in the near future. If so i will let you know. && thanks the visit would be nice...
~Tara
At 3:12pm on May 18, 2009, Jay Robare said…
Hey Michael...How are you doing dude?
 
 

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4 Months and doing fine

Hi everyone sorry i haven't been on i guess you can say i have been feeling better so i haven't spent a lot of time in front of the computer. Well I started my radiation treatments this past Monday, i go Mon - Fri for 7 weeks, but i am almost threw the first week so after tomorrow 6 weeks left. I am not having the bad nausea, but i have had prob with my bowels, and tired all the time. but just glad to get this done and over with. I found out how lucky I was to get the liver transplant the tumor…

Double Anniversary

I'm having a hard time wrapping my mind around the fact that this month is a double anniversary for me. On the 13th I will be 25 years out from my second kidney transplant. December, 25th will mark 30 years post first kidney transplant. It doesn't seem that its been that long ago,
I will forever think about the families that made the faithful decision that saved my life and the lives of other complete strangers. I do celebrate on the anniversaries but, I also mourn because of the loss that was e…

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Please and thank you! Lili

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To everyone out there!!

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