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NICOLA
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NICOLA's Discussions
Battlefront Campaign - The Gift of Life
Replied Sep. 26, 2008
NICOLA'S PAGE
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Latest Activity
Hi Howard
Hows things with you since your TRANSPLANT it is good to have you here there is a British group on here but there is not many of us on here from the uk hopeful more people will join with more input to the website.
Anyway nice to see you he…
This group has been set up to help and support people with the aftercare issues they have with there Transplant
This group has been set up to help and support people with the aftercare issues they have with there Transplant
Profile Information
- What is your city / state and country of residence?
- EAST SUSSEX IN THE UK
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Heart, Double Lung
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- I had my Transpalnt when I was 13 years old I was the 12th child in the UK to have a Heart and Lung Transpalnt I was blessed by a little boy Heart and Lung and with out his gift of life to me I would not be hear and my lovely little girl Megan would also not be hear I have been blessed in so many way and when megan was four I meet my donors mum and sister sadly the the father of the little boy took his own life .
But I see my donors mum alot and she been down to me for a holiday she is the most wonderful person in the world and she means alot to me.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- If you are a recipient, when did you have your transplant(s)?
- HAREFIELD HOSPITAL MIDDLESEX UK
- What is your principal transplant med(s)?
- Too many to name
- What is your hospital and, or doctor's name, city / state and country?
- Harefield Hospital Middlesex it was Sir Magdi Yacoab but it now Dr Martin Carby
- What do you do for a living?
- wife /mother cook clearner and most of all ZOO KEEPER
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- Well here I am 19 years down the line since I had my transplant and believe me it has been an adventure and a challenge, but I have learnt so much and for that is has made me a stronger person.
I guess I should tell you why I had to have a Heart and Lung Transplant in 1976. I was born with half a heart, two chambers and one valve when I should of had four chambers and two valves. At that time in medical history they were not doing Transplants on children, so it was not until the late 80’s they started to do them on children. In 1987 I was put on the transplant waiting list where I waited for two years. It was on the 17th of September I was given the gift I had been waiting for, I was the 12 child in th UK to have a Transpalnt so it was very new to me and the doctors. Since having my Transplant it has not been plain sailing. There been ups and downs, happy and sad days, but I have leant a lot about myself and about learning to live with new organs. I feel honoured and blessed to been given such a wonderful gift and without that gift I could of not of had such a lovely life, nor would I have been able to have my beautiful daughter Megan. Megan was born on the 11th of July 1998 and I was the third person in the UK to have a baby, but the first person in the UK to give birth naturally, so to me she is my second wonderful gift I have been given. It is now 19 years since I have had my Transplant and because I have been given so much support and help from other people, it is now my time to give back some of the support and help I have been given in the past. That is why I have set up this support group. It is for people all over the world who have had all sorts of Transplants, and the aim of the group is to support and understand each other, but most of all just be there and form wonderful friendships that will last for
- How did you find out about TransplantCafe.com?
- Just on the net thought myspace
- What is your relationship status?
- Married
- What is Your Favorite Quote(s)?
- Life is what you make it and each and everyone of us are blessed to been given the gift of life
- My Personal (non-commercial) Website, Page, or Blog URL:
- http://www.lookbeyondtheheart.com
- My "MySpace" Page:
- http://www.myspace.com/transplantgifts
- My Facebook Page:
- http://www.new.facebook.com/group.php?gid=16674848126&ref=ts
NICOLA's Photos
Comment Wall (59 comments)
- At 8:37am on August 19, 2009,
Raenotta said… 
- At 4:57pm on March 18, 2009,
Tara said… - Oh wow you are out so far! I hardly ever find people farther out then me! I'm glad you are doing so well. I have a myspace too so I'll look you up on there.
- At 9:30pm on March 15, 2009,
Stacey and Rachel Sweet said… - Hi, Nicola. I just joined this group today and read your story, which is quite inspiring to me. My daughter, Rachel, is now 9 years old. She received a bilateral lung transplant in 2000, when she was 6 months old. She is almost 9 years post-transplant. I live one day at a time with her, but do look forward to the future, as well--if that makes sense. You are now over 20 years post-transplant? I have never met anyone this far out, as we live in the pediatric world. Have you ever been diagnosed with chronic rejection? I am also wondering what your immunosuppressants are. When Rachel was transplanted, I was told that she should not have children because of her meds, especially the CellCept--but I see that you have a beautiful daughter of your own! Please share more of your story with me. Thanks, Stacey
- At 9:40am on October 15, 2008,
Leo Levenson said… - Hi Nicola
Thanks for adding me to your list of friends, we can never have enough friends. I'm new at this and not much of a writer so don't except a lot of chit chat from me. I would rather be out on the golf course. I play 4-5 days a week. My faimly is grown and on their own now so my wife and I are now retired and keep busy doing the important things golf, bowling and bocci with the special olympics as coachs. We love the people involved and they realy make our life complete.
Thanks again for adding me to your list.
Leo
- At 11:26pm on October 9, 2008,
Jane Tucker said… - Hi Nicola,
I see you kindly added me to your friendship list. It's nice to meet you Nicola. You inspire me!
I enjoyed your quote, it's really nice, and so extremely true.
I have several friends in Ontario, that have received a double lung and heart, and are doing beautifully.
You sound extremely busy with your family, which is wonderful. I'll look forward to getting to know you more Nicola. I can see you have already touched many lives in such a lasting way, your inspiring.
Jane
- At 4:30pm on October 9, 2008,
Terri Lynne said… - Hi Nicola, we have a little bit in commen. I was 13 also when I had my transplant, now 17 years out. I was Georgia's 8th child to have a liver transplant.
I am always inspired by the stories of you heart-lungers, keep up the good work!
- At 12:33pm on October 9, 2008,
Don Jones said… - Hi Nicola ;
You`re a Heart-Double Lung Transplant....just blows me away ! I feel so inadequate...being just a heart ! I assume that your donated organs came from the same donor ?
- At 4:33pm on October 5, 2008,
Kathryn Flynn said… - Nicola! How are you?
- At 10:02am on September 22, 2008,
Lisa Muscutt said… - Hi Nicola,
Wow it is amazing what you have been through. 19 years. Im a mere baby in comparison!lol It was a year this April 27th that I had my double lung transplant at Harefield Hospital. So how are you feeling now? I have just returned to work just part time but am loving it. I too waited 2 years for my transplant and had 6 false calls too. It was a rough time but things are brilliant now. x
- At 3:16pm on September 21, 2008,
Raenotta said…
- Hey Nicola just wanted to check in and see how you are doing....
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