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Steve Diamond
- Male
- Glenview
- United States
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Steve Diamond's Groups
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Latest Transplant News F…
179 members
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Team USA 2009
49 members
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Pancreas Transplants
23 members
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Team Prograf
170 members
Steve Diamond's Discussions
Increases in Amalyse & Lipase
Replied Dec. 11, 2008
When do you stop worrying about rejection?
Replied Dec. 5, 2008
Steve Diamond's Events
Steve's Page
Gifts Received
Steve Diamond has not received any gifts yet
Latest Activity
July 31, 2010 at 9:30pm to August 1, 2010 at 10pm
It's Party Time!!
We're setting up this event to see how many members who are going to the US Transplant Games in Madison are interested in attending a TC party, where you'll get to:
Meet other cafe members, eat, drink and dance the night away wit…
Candie,
I had a Pancreas only and still have my native kidneys. I waited a total of 6 weeks for my Pancreas so you might check out other centers because 2 years sounds way off to me.
My thoughts on doing both at the same time are why not go throug…
The new World Kidney Day Website is there!
Please visit www.worldkidneyday.org and sign up now!
Just wanted to say hello to everyone and hope all is going well. Have to share this with you Tracy....saw one of the renal doctors on Friday and I brought up the kidney and pancreas transplant. Explained to her that I have a live donor for a kidney…
This group is a place to discuss all issues related tp Pancreas transplants
Profile Information
- What is your city / state and country of residence?
- Glenview, Illinois, USA
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Pancreas
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- My Wife and Daughters whose strength pulled me thru 2 major surgeries and inspired me with their caring. My two great surgeons Dr. Talamoni who preformed my Pancreatectomy and Dr. Dixon Kaufman a caring and wonderful transplant surgeon.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- If you are a recipient, when did you have your transplant(s)?
- Aprin 25, 2008
- What is your principal transplant med(s)?
- Prograf, Rappamine
- What is your hospital and, or doctor's name, city / state and country?
- Northwestern Memorial Hoospital, Chicago, Illinois. Transplant by Dr. Dixon Kaufman
- What do you do for a living?
- Electrical Contractor
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- Three years ago I had my Pancreas as well as my Spleen, Gallbladder and much of my small intestines removed due to a tumor in my Pancreas. After waiting two years to make sure I was Cancer free I elected to get a Pancreas transplant due to a very brittle Diabetes and no digestive enzymes. I have recently passed my 6 month point and everything is going well.
- How did you find out about TransplantCafe.com?
- thru another site transplantbuddies
- What is your relationship status?
- Married
Steve Diamond's Photos
Comment Wall (11 comments)
- At 10:09pm on June 7, 2009,
Jen said… - Hey Steve!
I'm glad you're ok...get some rest and take care of yourself ok?!! :)
- At 8:09pm on February 19, 2009,
Mike B. said… - Hi Steve! I'm flying from Washington, D.C. to LAX, then flying to Bisquane with team USA. See you there. Have some great and safe workouts. All the best in health, and life. Mike
- At 7:30pm on January 28, 2009,
Stephanie Wetzel said… - hey i forgot to tell you--you should get linked up with bill wohl from arizona. he is big in cycling and a heart recip. he may have some lower key training ideas for you! he is super awesome and so so nice!! he is going to australia too!
- At 7:28pm on January 28, 2009,
Stephanie Wetzel said…
- haha well aren't i just the smarty pants! ha ha :-) i used to be on cellcept--it is a great drug...no side effects really. some tummy trouble, but heck what doesn't cause some gastro-distress!!! i wonder if you did some swimming if the lower impact would be okay? i know it is hard to sit still!!
- At 2:31pm on January 28, 2009,
Stephanie Wetzel said…
- hey steve! be sure to tell them you are training more because the increase in excercise will raise your creatnine levels...especially if you are a muscular guy! my brother had to stop excercising for a while before he could donate his kidney to me because it was elevating his levels!! he cycles ALOT!! just do what you can!!! did i remember to send you my letter...i think i forgot!! ack!!
- At 9:20pm on January 25, 2009,
Stephanie Wetzel said…
- hey there steve! welcome to team illinois!! :-) congrats on your transplant! ihope you can go to australia! got your email address and will send you a copy of my letter from work tomorrow!!
- At 3:53pm on January 14, 2009,
Neil Willens said… - Back to you Steve. Cellcept is usually used for about one year after other organ transplants, the length of administration determined by a statistical analysis of how well it has helped patients avoid rejection. I just read an April, 2008 study that also said there are now more reports of encephalopathy caused by this drug. We are all made up a bit differently and the way any medication affects us is based on our chemical makeup and how our activities and diet affect that makeup.
My own orientation is with liver transplants and should probably refrain from medical/pharmacological comments related to other organs.. Just a thought. Perhaps a nutritionist could help suggest how introduction of certain foods might help your post op rise in creatinine, or see if your transplant physician or a nephrologist might have to say on this topic. Thanks Steve. Wishing you well
- At 8:39pm on January 13, 2009,
Neil Willens said…
- Hi Steve,
Don't know that I've come across taking both Prograf AND Rappamune. They both seem to act as the primary anti-rejection medication and then, in addition to either of these, a patient will be prescribed Cellcept, which, at my transplant center, is given for about the first year or so post transplant.
I'm not saying anyone messed up, but I would question as to why there is a duplication in your anti-rejection medication. In my experience, it has been either/or with either Prograf or Rappamune. Please let me know what your transplant surgeon or transplant coordinator has to say about this. There could possibly be some reason I'm not aware of to use both simultaneouosly.
Neil
- At 8:03am on January 8, 2009,
Bill Wohl said…
Just email me at wohlbmw2000@aol.com and include your phone number and I will call. Our Cycling Team will be incredible for OZ in August. Probably strongest ever.
Bill
- At 5:41pm on December 10, 2008,
Tracy & Nancy said… - Steve hi....
I am so glad your Pancreas is doing good!!! Nice to meet you...Tracy
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