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TransplantCafe.com's Discussions
New Liver!
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TransplantCafe.com's Events
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U.S. Transplant Games, 2010 - Madison, Wisconsin
July 30, 2010 at 6pm to August 4, 2010 at 6pm – Madison, Wisconsin
NKF U.S. TRANSPLANT GAMES The National Kidney Foundation (NKF), along with its many Affiliates/Divisions, presents the NKF 2010 U.S. Transplant Games celebration of life that includes transplant r...
Organized by National Kidney Foundation | Type: Athletic, Competition
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TransplantCafe.com & Transplant Wisconsin Members- Transplant Games Party!!!
August 1, 2010 at 7pm to August 2, 2010 at 2am – The Great Dane Pub
It's Party Time & It's Official - We will party together in Madison on Sunday, August 1st at 7pm - Be There!!!We've partnered with Dr. Michael Hofmann and Transplant Wisconsin to organize an a...
Organized by TransplantCafe.com & Transplant Wisconsin | Type: transplant, cafe, /, wisconsin, party
Nelson's Transplant Corner
Gifts Received (2)
Snowy Owl
From Lili Feldman
Pink Ribbon
From Candie
Latest Activity
Three -Five of us will be coming from KY to the games this year -first time for me as a transplant recipient (6 organs) -first time for us as a donor family, too. Looking forward to meeting others -making new friends.
TransplantCafe.com & Transplant Wisconsin Members- Transplant Games Party!!! at The Great Dane Pub
August 1, 2010 at 7pm to August 2, 2010 at 2am
It's Party Time & It's Official - We will party together in Madison on Sunday, August 1st at 7pm - Be There!!!We've partnered with Dr. Michael Hofmann and Transplant Wisconsin to organize an awesome party for all TC and Transplant Wisconsin membe...
I signed the petition too, on the behalf of everyone that is involved in transplants. From the office staff to the surgeons, the social workers to the donors and their families. I think loosing this program would be a disservice to them.
Are you a fan of CBS's new transplant drama TV series 'Three Rivers?' Then this is the group for you to meet other fans and discuss your favorite episodes!
Jean , Thank You for the petition link, I signed and hope it reaches many more so they can sign. I beleive this show has a good story line, shows compassion and made others think about becoming a donor. Also gives hope /help to anyone waiting for ...
Thank you for signing Diane. I don't know why I'm thanking you. I guess I take this personally. WE ALL should take it personally!
I definitely signed it!!!! It was show I loved and was waiting for to play every sunday.
Hope they will keep it on!!!
Are you a fan of CBS's new transplant drama TV series 'Three Rivers?' Then this is the group for you to meet other fans and discuss your favorite episodes!
Jean thanks for posting the link. I just signed it and hopefully others will follow suit and do the same thing. There is sooo much junk on TV I hate to see a show that actually does good cast to the side so quickly.
I already have Jean. I'm on page 13. Come on people, there are people from other countries signing this. Which is great to see. Even if you haven't seen the show, please vote to keep it on. The proof is in the pudding, as Glenn's posting shows!
We...
Link to the petition to let CBS know how you feel about the cancellation of Three Rivers. I signed it. Will you? Thanks!
http://tvseriesfinale.com/tv-show/three-rivers-petition/
Glenn, thanks for posting this! This is awesome. It's proof! I already posted it on my Facebook page. God bless you. Lili
CAN TV SAVE YOUR LIFE: "THREE RIVERS" HAS!!!
Read story: Donate Life Organ & Tissue Donation Blog
Looks like a very cool place to live with all that green around. Peaceful..
AWESOME RACHAEL!! So happy for you.. Congrats!!
Cheers
Nelson
This is where we get creative with ideas for increasing donor awareness. Should the government, foundations, groups, hospitals, organizations, etc. be doing more? Or, have you ever thought of a new way that might motivate donor sign ups?
I am sorry to hear the show is being cancelled, I liked it and thought it would make more people understand the importance of being a donor. What a shame and I will miss the show.
Are you a fan of CBS's new transplant drama TV series 'Three Rivers?' Then this is the group for you to meet other fans and discuss your favorite episodes!
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Profile Information
- What is your city / state and country of residence?
- "The OC," CA - USA
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Liver
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- I have so many people to thank for being here today that I would need another website like this one just for them. So, I'll keep it simple:
TransplantCafe.com is dedicated to:
1. My mom, dad, uncle, brother and Kari without whom I would not have lived through the rough times after transplantation.
2. Dr. Imagawa at UCI Medical Center and the entire 1998 Liver Transplant Team who became and will always be family and without whom I (or my mom) wouldn't have lived through surgery.
3. All donors; living donors, those who register with their state, or country as donors and those who think life for someone else they have never met, when the life of their loved one is taken away.
4. My donors Jack and Ruth for the gift of life at a time when life was taken from them with the sudden death of their son Gary.
5. To you, the transplant recipient for being a great example of the human will to live and showing the world how successful transplantation can be.
6. Lastly, to the world itself which still needs our help to change it's attitude towards donation.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- If you are a recipient, when did you have your transplant(s)?
- March 5, 1998
- What is your principal transplant med(s)?
- Prograf, Cellcept
- What is your hospital and, or doctor's name, city / state and country?
- UCI Medical Center, Orange California.
My transplant and current doctor is Dr. David Imagawa.
- What do you do for a living?
- Internet Marketing
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- My name is Nelson. I'm a Liver transplant recipient since 1998. I had to have an emergency life saving liver transplant after I had been prescribed a thyroid medication (by a well meaning doctor) to which I had an allergic reaction causing me fulminate liver failure.
My experience with transplantation was a bit different than with most recipients who unfortunately have to wait a long time to receive their transplant. I had no idea I needed a transplant until after I woke up with a new liver. It was a weird feeling suddenly waking up into a whole new paradigm without prior knowledge of needing a transplant until after transplantation.
Transplantation has brought me a lot of amazing experiences and friendships that I would not want to be without today if it meant not having ever had my transplant. Having a transplant has allowed me to see great places like France for the World Transplant Games in 2003 and many US cities with the US Transplant Games, with more games and travel on the horizon.
It was those experiences and friendships that inspired TransplantCafe.com. It was an idea that evolved from a simple thought to author some sort of "fun things having a transplant will allow you to do more of or faster" type of manual or book. Being an Internet marketer, it was easy to see that "web2.0" and user generated content social networking would serve the transplant community much more.
I hope you'll enjoy the site and make TransplantCafe.com your new home to connect and share your experience with the transplant community and the world!
Nelson
- How did you find out about TransplantCafe.com?
- We thought the transplant community would benefit from a tool like this that promotes and allows for more and a deeper interaction.
- What is your relationship status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Music: Reggae, Hip-Hop, R&B, Latin Jazz, Jazz, Afro beats, House, Rock (U2, Hendrix, Kravitz, Ben Harper..).
Movies: Pulp Fiction, True Romance, Crimson Tide, Crouching Tiger Hidden Dragon, Amores Perros, S.S. Redemption, The Secret..
Books: The Science of Getting Rich, As a Man Thinketh, The 4-hour Workweek, Power Vs. Force, and other Human behavior, psychology and marketing books.
- What is Your Favorite Quote(s)?
- "Never doubt that a small group of thoughtful committed citizens can change the world; indeed, it's the only thing that ever has"
~Margaret Mead"God is the DJ, You are the Music, Life is the Dance floor"
~Pink"The possible ranks higher than the actual"
~Martin Heidegger"Who let the dogs out?" ;~)
~Baja Men
- My Personal (non-commercial) Website, Page, or Blog URL:
- http://TransplantCafe.com
- My "MySpace" Page:
- http://myspace.com/1nels
- My Facebook Page:
- http://www.facebook.com/freytes
Contacting Transplant Cafe:
Website Support: Before emailing for website support, click the link below to visit the Transplant Cafe support forum where you can search support discussions for answers to any technical questions.
Click Here to visit the Transplant Cafe support forum! *If your technical or other website question isn't already addressed there, create a new discussion thread with your question and a staff member or fellow community member will reply to your thread to help you.
Contact Us: 1. Send Nelson a private message by clicking "Send a Message" under the profile photo above (must first become friends on TC to use this feature). Or, 2. For other professional inquiries, please email us at transplantcafe@gmail.com.
& GO:
TransplantCafe.com's Photos
TransplantCafe.com's Videos
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Living Donors needed
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TransplantCafe.com's Blog
The Transplant Cafe Art Gallery!
Purchase Beautiful Drawings, Paintings & Digital Art Created by Very Talented Artists, Members of Transplant Cafe!
We're proud to announce that select Transplant Cafe member work is now available as museum-quality framed prints on paper or canvas!
Customize your print with several high quality papers, canvases, frames and non-glare glass. Just click on any of the pieces below to explore what it would look like on your wall or as a gift - even test different wall colors to
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Posted on September 15, 2009 at 8:00pm — 4 Comments
Have you developed New Talents AFTER your transplant? Splash News wants to interview you! $$
Hello everyone!
Recently I was contacted by Laura Johnston, a writer who works for a company called "Splash News and Picture Agency," a worldwide publisher of newsworthy stories.
Laura would like to feature some stories (the more outrageous and 'far out' or extreme the better) of transplant recipients who have developed new talents that they feel were passed on to them from their organ donor.
To have an idea what this is all about,… Continue
Recently I was contacted by Laura Johnston, a writer who works for a company called "Splash News and Picture Agency," a worldwide publisher of newsworthy stories.
Laura would like to feature some stories (the more outrageous and 'far out' or extreme the better) of transplant recipients who have developed new talents that they feel were passed on to them from their organ donor.
To have an idea what this is all about,… Continue
Posted on September 10, 2009 at 8:30pm — 2 Comments
Apple CEO, Steven Jobs Appears On Stage - Discusses Liver Transplant!
SAN FRANCISCO -
Apple Inc. CEO Steve Jobs has returned to his showman role, taking the stage Wednesday at a product launch event for the first time since his nearly six-month-long medical leave.
Jobs, who had a liver transplant this spring, got a standing ovation. Looking thin and speaking quietly and with a scratchy voice, he told the audience he had received the liver of a young... clic… Continue
Apple Inc. CEO Steve Jobs has returned to his showman role, taking the stage Wednesday at a product launch event for the first time since his nearly six-month-long medical leave.
Jobs, who had a liver transplant this spring, got a standing ovation. Looking thin and speaking quietly and with a scratchy voice, he told the audience he had received the liver of a young... clic… Continue
Posted on September 9, 2009 at 2:06pm —
Busting Myths and Misconceptions About Organ Donation
Have you ever heard someone say something like "if you're an organ donor and are in a bad accident and in critical condition, doctors will let you die so that they can take your organs for transplant" ?? Or, "oh no, I can't become a donor, because if I do, something horrible may happen to me!" ?
Even some of us who have transplants, may even be guilty of having entertain similar misconceptions before ever needing a transplant.
Many foundations and organizations have tried to bring these myths… Continue
Even some of us who have transplants, may even be guilty of having entertain similar misconceptions before ever needing a transplant.
Many foundations and organizations have tried to bring these myths… Continue
Posted on August 6, 2009 at 7:54pm — 18 Comments
Cafe member Meghann Murphy gets her double lung transplant!!
Great news.. Cafe member Meghann Murphy received her double lung transplant and is reportedly doing very well! Obviously, she hasn't had much time to come online lately and update us personally, but the word is she is doing, looking and feeling like a million dollars!!
Here's a link to Meghann's page in case you want to stop by and say hello, or find out more about Meghann's transplant journey:
http://transplantcafe.com/profi… Continue
Here's a link to Meghann's page in case you want to stop by and say hello, or find out more about Meghann's transplant journey:
http://transplantcafe.com/profi… Continue
Posted on July 14, 2009 at 3:36pm — 4 Comments
Comment Wall (451 comments)
- At 7:52pm on November 28, 2009,
Lili Feldman said…
- Thanks Nelson. No worries. I have to educate myself first. I can see that. You know, like an owl in the night! Whooooo
- At 1:30am on November 28, 2009,
Lili Feldman said…
- Hoot hoot! are you up fellow nightowl? You're in Orange Co. and I'm in San Diego. Do you know anyone who could help me put up a web site as cool as Karen's?
Whoooooooooo?
- At 7:49pm on November 24, 2009,
Jay Robare said…
- Happy Thanksgiving from Ft Lauderdale
- At 2:34am on November 24, 2009, Lili Feldman gave TransplantCafe.com a gift…
THANK YOU FOR YOUR GUIDANCE, PATIENCE, AND GOING OUT OF YOUR WAY FOR ME. AND THANK YOU FOR THIS SITE!From the Gift Store
- At 1:33pm on November 22, 2009,
cleopatra said… - hello nelson, hace cuanto no vienes a la isla....
- At 11:32am on November 18, 2009,
cleopatra said…
- hhollla nelson,. como estas si vivo en puerto rico en ceiba, estaba en louisiana para el trasplante pero ya llegue a pr....so happppppyyyyyyy. llegue el 24 de octubre2009
- At 11:49pm on November 17, 2009,
Anne Kirchmier said… - Nelson, Just read the note from Marshall Spencer. It is amazing to know someone now has a gift. This is so great to hear or read.
I have a talk on Thurs. to nurses and my Big Talk is on Fri. night at 6:30 to Donor Families. I actually look forward to this, I'm sure I will be nervous but I can feel it is what I am to do.
Finished my 8k at the Richmond Marathon. It was huge, I heard there were15,000 runners total in the marathon, 1/2 marathon and 8k. I felt like I was in heaven running with my constant companion.. Lifenet had a great group together to support organ donation and we had a good number of people to sign up to be donors. Take care of yourself, AnneK
- At 8:49am on November 14, 2009,
Marshall Spencer said… - Hi Nelson: My wife Lina Spencer is in your friend's list here on Transplant Cafe so I wanted to let you know that we got "THE CALL" last night. Lina was told this morning that the surgery would start at 10:30am ... as I am able and if I remember I will provide updates. I just started a page of my own here and will try to do so there.
Best regards,Marshall Spencer
- At 10:18pm on November 11, 2009,
Anne Kirchmier said…
- Hey Nelson, Do you ever wonder why we were lucky enough to receive the gift of life? When I woke up from my transplant I knew for the first time in 13yrs. I was well. I could feel my body was better even in the beginning when my body was sore from surgery.. At that point I wept over my wellness, then wept over knowing someone out there lost their child. I think everyday of my gift and always pray to GOD to guide me with what he wants me to do with this special gift. I was asked to speak to a group of nurses in heart failure about my experience. From there I have worked with Lifenet to spread the word. Next Thursday I will be speaking at an event named THE ANGEL TREE. The room will be filled with donor families. I feel this will be the most important talk I will ever give and I hope my words express the gratitude we all feel each day. I will show pictures of the World Games of faces around the world that have been touch by the gift of life. Have you ever given a talk like this.. It seems that maybe this is what I am to do. Share my experience and spread the word. I hope there is more I can do to give back and keep praying for direction. Take care AnneK
- At 10:48am on November 11, 2009,
Anne Kirchmier said…
- oh, a b-ball man. I'll come to cheer you on at the games. Happy to hear about your good health. I think you are awesome to come to the games in such a short notice to support Team USA. We would not have met, and I probably would not have heard of TransplantCafe . I thank you for this web-site. I cannot imagine the hours you spent creating this and it has touched so many people. Go Nelson. You had a liver right? Take care and I'm sending you a hug for all you do. Annek You make me smile
- At 7:22pm on November 10, 2009,
Anne Kirchmier said…
- Are you kidding! I will never miss a game as long as I am healthy. I was so tired on the Gala Night in Australia, I could hardly stand. I wish I could have stayed up later to hang out with you guys. I will be at the games, how about you. I know the games are in July which seem like a long time away, but time flies. I hope so much you are there. I met so many nice people and look forward to seeing everyone, and this time I will not have jetlag.....Were you tired when you came home? Where do you live? I forgot....I am in Virginia just south of DC. How come you did'nt compete in the games, and will you compete in the US games? What sports.. I will again do the 800m, 1500m, and 5k. Last year I played volleyball, its fun but I like basketball better. The only problem is that our team does'nt have a womens team. I may do a swim, or just something entirely different. I do not want to do anything to hurt my back..... I have decided I may try to run the Boston Marathon if Association will let me in.. I qualified in 1998 in Texas, but never got to run it due to my illness. Some of my avid running friends think I should call Boston, tell them the story and think they may let me in... We will see. If I do get in I may shoot for 2011. It makes me nervous just thinking about it. It will take a lot of work to build up for this and not get injured...I think you are awesome, and hope see you in July... Do you ever have any problems from your transplant? Keep me up to date with you. Who else has joined TransplantCafe that I may have met in Australia?
- At 4:55pm on November 10, 2009,
Alicia Nelson said… - Thank you, I appricate it.
- At 9:10pm on November 9, 2009,
Anne Kirchmier said…
- Hey Nelson, How have you been? I have missed seeing you. I finally joined! Ive been really busy since ive been back from Australia, I hope your well and hope to get in touch with you soon!
- At 11:00pm on October 31, 2009,
Maria B said… - Thank you for creating this site!
- At 7:37am on October 25, 2009, Candie gave TransplantCafe.com a gift…
- To a dear friend who has always let me vent, has always thought about how I was doing, let me ask you computer questions all the time:). And liked my car! LOL. Have a great weekend! ;)From the Gift Store
- At 4:17pm on October 20, 2009,
Shivan Friesen said… - Ahaha, well my white white skin got me into thinking I should be MJ for Halloween, plus I have this really MJ-like shirt that I got from a costume bin at a camp I go to (I was supposed to return it but I accidentally packed it and didn't realize I had it until I got home). So I told my family I was going to good old Michael for Halloween and my sisters came up with their zombie idea after that. We all think it's going to be great. And yes, we are DEFINITELY going to do the Thriller dance. :) And hopefully I can finish learning the moonwalk...to give the full MJ effect. :D
- At 11:07am on October 20, 2009,
Bridget M. Strube said… - Hello All! My brother and I underwent surgery in December of 2006. I was in nursing school at the time and managed to slip it in on my Christmas break. Recovery was fast for me and I was amazed to see my brother looking and feeling great within hours of the transplant! When people ask me "so how was it?" I tell them I'd do it again if I could. Since then my husband is back in the Marine Corps and we are in beautiful Hawaii. I work as a nurse and have a beautiful 5 month old daughter.
and yeah, I could use some help rotating my photo - couldn't figure it out :)
- At 10:21am on October 20, 2009,
Shivan Friesen said…
- I'm going to be Michael Jackson, and my sisters are going to be my backup zombies. :P
- At 1:13am on October 16, 2009,
TransplantCafe.com said…
- At 10:58am on September 30, 2009,
Alan Molenaar said… - So I understand that you're the person to thank for this wonderful site. So a BIG thank you. It's a wonderful resource and while I've only been a member for a week or so, it certainly has much value to it. So thank you. I'm 7 weeks post op from my kidney transplant (my mom donated) and the whole transplant experience has been a wonderful one. I see that you attended the aus games last month. AWESOME! I'm planning on hitting Sweden come 2011, so maybe see you there...Take care, and look after that special Liver of yours ;)
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Member Blog Posts
4 Months and doing fine
Hi everyone sorry i haven't been on i guess you can say i have been feeling better so i haven't spent a lot of time in front of the computer. Well I started my radiation treatments this past Monday, i go Mon - Fri for 7 weeks, but i am almost threw the first week so after tomorrow 6 weeks left. I am not having the bad nausea, but i have had prob with my bowels, and tired all the time. but just glad to get this done and over with. I found out how lucky I was to get the liver transplant the tumor…Double Anniversary
I'm having a hard time wrapping my mind around the fact that this month is a double anniversary for me. On the 13th I will be 25 years out from my second kidney transplant. December, 25th will mark 30 years post first kidney transplant. It doesn't seem that its been that long ago,I will forever think about the families that made the faithful decision that saved my life and the lives of other complete strangers. I do celebrate on the anniversaries but, I also mourn because of the loss that was e…
Fight canceling Three Rivers
We can fight back and try to save Three Rivers. Go to : http://tvseriesfinale.com and vote. And speak your mind.Please and thank you! Lili
American Transplant Foundation needs your help/vote!
To everyone out there!!American Transplant Foundation is a non-profit organization that strives to eliminate our country's shortage of human transplant organs. We work to increase the donation of organs and tissue to reduce the growing list of men, women and children who are awaiting a lifesaving transplant.
So how can you help???
Its very easy and very simple:
If you haven't voted for us (Transplant Foundation, Inc) in the Chase Community Giving Facebook campaign yet,…
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