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NFT November is National Marrow Awareness Month

Are you awaiting a bone marrow transplant? Did you know November is National Marrow Awareness Month? This may be the perfect time to plan a bone marrow drive! To plan a drive, simply call your local bone marrow recruitment center, and they will walk you through the process. Click here to find a recruitment center in your area. Seventy percent of bone marrow patients do not have a matched dono… Continue

Added by NFT on November 9, 2009 at 1:52pm — No Comments

Jay Robare My transplant is getting very close.

This is my first posting in quite some time. The last 6 months I have been waiting for different things to happen and it has been both an exciting and frustrating time. A friend who became a client of mine at the chiropractor asked me if she could donate one of her kidneys to me; I gladly accepted. She gave 13 vile's of blood and off to the lab it went. About 5 weeks later I got a phone call telling me that my friend was a very good match and that transplant might happen as soon as early Decembe… Continue

Added by Jay Robare on November 8, 2009 at 6:54pm — 3 Comments

Reagan Wilkins New Here!

Hello Everyone, I am new here so I just wanted to introduce myself. I had my liver transplant 16yrs ago in October. My name is Reagan and I live in Virginia. At 7 weeks my parents found out I had Biliary atresia. They did except me to live to the age of 2. I did great until the age of 10 or 11 and my liver started to fail. And when it did it effected my lungs and esophagus. I was on the list for 6 months before I got the call on October 6th 1993. My surgery last 24+ hours. When the went in they… Continue

Added by Reagan Wilkins on November 6, 2009 at 9:43pm — 1 Comment

Terri Lynne Liver labs not so good, yet again

I really was thinking positive and was sure numbers would be better this week, I kept telling myself that. I go today, had labs and visited with friends who were also their getting labs. Today was a great day. I come home, coordinator calls me says numbers are high again and even higher than before so I get to go back again next week for labs and MRI. I am not going to let this get to me though. I can handle this. The other test about my disease wont be back for a week. Continue

Added by Terri Lynne on November 6, 2009 at 6:57pm — 4 Comments

Rachael Beecy still waiting!

Still waiting with a MELD of 25....go up to a 28 as of Nov 22! Continue

Added by Rachael Beecy on November 5, 2009 at 12:32am — 7 Comments

NTAF New NTAF Website

We are pleased to announce that NTAF has recently launched a new Web site! We welcome all Transplant Café friends to visit our updated site at www.transplantfund.org. One of our expanded Web site features: Personalized “minisites” within the NTAF Web site for each patient who is actively fundraising through NTAF. Improved and user-friendly site capabilities allow patients to easily customize their individual pages within their m… Continue

Added by NTAF on November 4, 2009 at 6:18pm — No Comments

American Transplant Foundation Colorado's Newest License Plate

Colorado has officially joined 22 other states around the nation in raising awareness about organ and tissue donation through specialty license plates! In May 2009, the Colorado General Assembly approved legislation to create a special Donate Life license plate in Colorado, a project initiated… Continue

Added by American Transplant Foundation on November 3, 2009 at 2:00pm — No Comments

Paul Anthony Worthington Weight-loss... progress report

My last blog entry detailed how I had begun the long process of losing weight. Although at first it was a rapid loss due to the large drop in my Prednisolone dosage it soon levelled out, however I was losing around 2lbs (1kg) a week. I detailed how I had ballooned to a weight of 19st 10lbs (125kg), but had managed to lose just over a stone in weight. I was down to 18st 6 back then. As of today I now weigh in at 17st 6lbs, hence since my last blog entry I have lost another stone in weight. I am… Continue

Added by Paul Anthony Worthington on November 3, 2009 at 12:26pm — No Comments

Joanna Voguit my donor info

After searching the internet for the last 10months I found my donor's full name and birthday!!!! I am in SHOCK! I am crying I don't know how to feel right now. All I wanted to know was this info and now I don't know how to feel? OMG! Continue

Added by Joanna Voguit on November 2, 2009 at 11:14pm — 3 Comments

TRACY CAMELIO i always wonder what my donor looked like

i have always wanted to know about my donor or what he looked like. was he close to his family? and the biggest thing i would love to know is what he looked like anyone else feel the same? Continue

Added by TRACY CAMELIO on November 1, 2009 at 6:53pm — 4 Comments

Patrick Gartside California Pizza Kitchen Fundraiser

California Pizza Kitchen at Ala Moana Center is hosting a fundraiser on Tuesday, November 10th, 2009 for The National Kidney Foundation. All you have to do is show up and eat! Present the flyer to you server or take out server and 20% of your check will go directly to the team! Details and fliers here: http://www.teamhawaii2010.org/CPK Continue

Added by Patrick Gartside on October 31, 2009 at 7:28pm — No Comments

Deborah HIGH PROGRAF LEVELS?

I JUST RECIEVED A CALL FROM MY TRANSPLANT NURSE AND SHE SAID MY PROGRAF LEVELS WENT FROM A 5-6 TO A 12 ! I HAD NO IDEA WHAT THIS MEANT SHE ASKED IF I HAD GRAPEFRUIT JUICE WHICH I HAVENT I ACTUALLY DONT LIKE IT! SO I NEED TO GO REDO MY LABS ON MONDAY NOV.2 I AM SOO WORRIED BECAUSE I KNOW THIS COULD MEAN REJECTION! I GUESS I WOULD LIKE TO KNOW IF ANYONE HAS HAD THIS PROBLEM? I HAVE BEEN HAVING PAIN IN MY UPPER LEFT ABDOMIN AREA AND MY KIDNEY IS ON MY RIGHT. MY DOCTOR LOWERED MY MAGNESIUM. SINCE MY… Continue

Added by Deborah on October 30, 2009 at 8:03pm — 4 Comments

Glenn Matsuki 2010 DONATE LIFE FLOAT RIDER

I have been nominated by Cedars-Sinai Medical Center to ride the 2010 Rose Parade Float this coming January 1. I am honored to be a part of the world's largest organ, eye & tissue donation awareness event. Taking this once in a life time opportunity, I am raising funds to continue the great work… Continue

Added by Glenn Matsuki on October 30, 2009 at 6:12pm — 1 Comment

Kim Jacques telling him....

Hi All! A little over two weeks ago I signed up for Eharmony and instantly, I was contacted by someone. His name is Jeffrey; he's my age (29) and also works for the state. We made it through the four "stages" on the site and got thru to "Open Communcation." We exchanged numbers and after our very first phone call, he sent me an e-mail asking me out to dinner. Tuesday, October 20, was the date and it went well. During the date we somehow started talking about scars. I almost said the big T word… Continue

Added by Kim Jacques on October 29, 2009 at 5:09pm — 15 Comments

Heather Brenner How to thank someone!! my letter to the family, I need help

Hi all, well it has been a year and a month and some odd days since my Liver Transplant and I did have some episodes of rejection I am now feeling comfortable and ready to write my letter to the donor family, I am having some trouble on what to write and what Not to write.. I don't want to offend the family at all and I really want them to contact me. I am not sure if I should say that I am a Christian and that I do Hospital Ministry? Any ANY feedback/suggestions would be great!!! Please let me… Continue

Added by Heather Brenner on October 28, 2009 at 9:00pm — 3 Comments

NTAF NTAF Patient Gives Back - A Story of Inspiration

Dani Shotel Greene, of the NTAF Bone Marrow Transplant Fund, has been extremely busy the past few months fundraising for The Leukemia & Lymphoma Society’s 2009 Woman of the Year Competition. With the help of her husband, Scott, and a deeply dedicated support system (Team Promise), Dani was able to raise more than $50,000 throughout the 10-week competition to benefit the Society’s D.C. Chapter! For the second year in a row, Dani and the members of Team Promise raised more money for the D.C. C… Continue

Added by NTAF on October 27, 2009 at 12:51pm — No Comments

Patrick Gartside National Kidney Foundation: Team Hawaii 2010

Check out our web page! http://teamhawaii2010.org/ Continue

Added by Patrick Gartside on October 27, 2009 at 3:19am — No Comments

American Transplant Foundation On the List by Steve Farber and Harlan Abrahams

The American Transplant Foundation is pleased to announce the release of On the List, written by Steve Farber and Harlan Abrahams. This compelling new book examines the ethical, legal, political, and economic debates over organ transplant policies as two very different families navigate the transplant ma… Continue

Added by American Transplant Foundation on October 26, 2009 at 2:30pm — No Comments

Holdol Count the candy corn

Since Halloween is right around the corner, let's play Count the candy corn :) Let's see who guesses closest... GUESS how many are in the jar below.... I'll reveal the secret number on Halloween!!

Continue

Added by Holdol on October 25, 2009 at 8:43pm — 12 Comments

Michael Strane Too Much Info

Warning: A lot has been going on with me over the past couple months, some of it good, some of it bad, all of it going seems to continue to on and on It is a time of good news and bad news for me. First the good news, my one year anniversary was on September 24, 2009. Outside of car accident that left Wendy without her car for a month, it was a good day. Wendy and I visited the hospital, delivered a cake and some thank you cards, and went out to a great dinner at Providence . Actually one of th… Continue

Added by Michael Strane on October 25, 2009 at 8:16pm — 4 Comments

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if your on the waiting list and have questions feel free to contact me, I had a heart/Double lung transplant.
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Got my first call on friday everyone...but it was a false alarm. So the next one can't be too far away!
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November is National Marrow Awareness Month

Are you awaiting a bone marrow transplant? Did you know November is National Marrow Awareness Month? This may be the perfect time to plan a bone marrow drive! To plan a drive, simply call your local bone marrow recruitment center, and they will walk you through the process. Click here to find a recruitment center in your area.

Seventy percent of bone marrow patients do not have a matched dono…

My transplant is getting very close.

This is my first posting in quite some time. The last 6 months I have been waiting for different things to happen and it has been both an exciting and frustrating time. A friend who became a client of mine at the chiropractor asked me if she could donate one of her kidneys to me; I gladly accepted. She gave 13 vile's of blood and off to the lab it went. About 5 weeks later I got a phone call telling me that my friend was a very good match and that transplant might happen as soon as early Decembe…

New Here!

Hello Everyone,
I am new here so I just wanted to introduce myself. I had my liver transplant 16yrs ago in October. My name is Reagan and I live in Virginia. At 7 weeks my parents found out I had Biliary atresia. They did except me to live to the age of 2. I did great until the age of 10 or 11 and my liver started to fail. And when it did it effected my lungs and esophagus. I was on the list for 6 months before I got the call on October 6th 1993. My surgery last 24+ hours. When the went in they…

Liver labs not so good, yet again

I really was thinking positive and was sure numbers would be better this week, I kept telling myself that. I go today, had labs and visited with friends who were also their getting labs. Today was a great day. I come home, coordinator calls me says numbers are high again and even higher than before so I get to go back again next week for labs and MRI. I am not going to let this get to me though. I can handle this.

The other test about my disease wont be back for a week.

still waiting!

Still waiting with a MELD of 25....go up to a 28 as of Nov 22!

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